{"id":1678,"date":"2019-04-05T15:57:00","date_gmt":"2019-04-05T07:57:00","guid":{"rendered":"https:\/\/www.ilovenatural.store\/?post_type=blog&p=1678"},"modified":"2021-02-16T11:47:08","modified_gmt":"2021-02-16T03:47:08","slug":"eczema-and-mental-health-caring-for-a-child-with-eczema","status":"publish","type":"blog","link":"https:\/\/www.ilovenatural.store\/zh\/blog\/eczema-and-mental-health-caring-for-a-child-with-eczema\/","title":{"rendered":"Eczema and Mental Health: Caring for a Child with Eczema"},"content":{"rendered":"

One of the most difficult things I\u2019ve ever gone through was caring for my son as a baby\/toddler with severe eczema. I was trying everything I could to relieve the itchiness and pain, yet my son was suffering. I was sometimes at my whit\u2019s end, not knowing what I could do to help my precious child. To add to the stress of seeing my child suffer, I was constantly watching him, making sure he was not scratching and bleeding. There were rigorous daily skin routines to go through. There were nights of restless or lost sleep.
\nIf you have been in the same situation, you understand what I do:\u00a0there is a great deal of emotional stress that results from caring for a child with significant eczema.<\/b><\/p>\n

Impact of Eczema on Caregivers<\/b><\/span><\/h2>\n

The significant impact on parents of children atopic dermatitis (AD) is well documented. In fact,\u00a0one study<\/a>\u00a0compared the quality of life of parent of children with eczema to parents of children with various chronic diseases including cerebral palsy, renal disease, cystic fibrosis, asthma, psoriasis, epilepsy, diabetes, alopecia, localized eczema, acne and nevi. Generalized eczema was second only to cerebral palsy in impact on quality of life, followed closely by renal disease and cystic fibrosis.
\nParents caring for children with eczema can experience impact in areas such as exhaustion and sleep deprivation, social embarrassment, frustration, helplessness, sadness, depression and guilt. Parents often feel strain due to the amount of time required for eczema care as well as the financial burden of extra medical appointments and purchasing care products.
\nI remember in nursing school studying about \u201ccaregiver role strain,\u201d which can be defined as: \u201cWhen caregivers find it hard to perform their roles or feel stressed by situations, such as: financial burden, increased responsibility, change in family life, role change.\u201d It basically boils down to excess stress leading to burnout signs like anger, social withdrawal, health problems, sleep problems, or feelings of guilt of worthlessness.
\nAlthough caregiver role strain is commonly applied to those taking care of aging or elderly parents, it is also very applicable for and documented in those caring for children with chronic conditions like eczema. Not only is it important to find solutions for your child eczema<\/a>, but it is vitally important to implement strategies for your own health and well being.<\/p>\n

Care for Caregivers<\/b><\/span><\/h2>\n

Finding support<\/b><\/span><\/h3>\n

Support can make a huge difference for those with caregiver strain. Knowing that you are not alone is so important. One way to connect with other parents who are going through the same thing is through facebook groups. There are good number of eczema support groups, some specifically for parents. Hearing about the experience of other parents in the same shoes as you and gaining practical tips for eczema care can be very helpful (although please do your research and check with your medical provider about advice you hear).
\nWith the prevalence of eczema and allergic conditions, you may also find a local support group. Again, facebook groups could be a way to find someone who lives in the same area as you. Your doctor or other medical team members may know of a local support group.
\nSupport can also be gained from a close friend or family member, even if they haven\u2019t been in the same circumstance as you. A great person to have on your team is someone who can listen when you need to talk, who acknowledges the significance of the challenges you face with your child\u2019s eczema, and is willing to help in practical ways such as watching your child.<\/p>\n

Take Time Away<\/b><\/span><\/h3>\n

I remember feeling like I was the only one who could care for my child with eczema. I didn\u2019t want to put the burden of dealing with my child\u2019s itching, bleeding and pain on someone else, even for a short time. Can you relate to such feelings?
\nWhile it might be true that a parent is the one who knows his or her child the best and is the best one to offer care, it is also true that when you or I are burned out as parents, it is not a the best thing for our children or ourselves. It\u2019s important to take time away, even short amounts, to recharge.
\nIf possible, find someone else you can trust with your child\u2019s care, someone who is willing to follow the protocols for medication and skincare should a problem arise. If your child does better in your own home, ask if your support person can come to watch your child there. Use your time away to do something that rejuvenates you, so you can return better prepared to care for your child.<\/p>\n

Get Your Zzzzz\u2019s<\/b><\/span><\/h3>\n

Sleep deprivation is a big area of strain on parents of children, especially young children, with eczema. Unfortunately, there\u2019s no easy way around this! \u201cWork on your sleep\u201d may sound like an impossible suggestion. However, if this is a big source of stress for you, make it a focus of care for you and your child. Methods like a warm bath before bed,\u00a0wet wrapping<\/a>\u00a0overnight, or using a \u201cno-scratch\u201d covering for hands may help your little one sleep better. Make sure the mattress and sheets in your child\u2019s bed are not bothering him or her. If you feel like you\u2019ve tried everything to no avail, you may want to talk to your doctor about using a medicine to reduce itching and help your child sleep. You may also find some helpful suggestions for sleep through support groups.
\nYou can maximize the sleep you do get by maintaining\u00a0best practices for a good night\u2019s sleep<\/a>.<\/p>\n

Hold on to Hope<\/b><\/span><\/h3>\n

This is SO much easier said than done, but I speak from personal experience on this point. Believing that there is no cure and nothing you can do for eczema will quickly lead to hopelessness. When my kids were struggling with severe eczema, what kept me going was my belief that there truly was a way to heal from eczema. I was determined to find it. We were proactive about trying new (and not always easy) methods for healing. The stories of others healing from eczema<\/a> inspired me. That\u2019s why I now share my own family\u2019s story, which you can\u00a0find here<\/a>.<\/p>\n

What about you? What is the most difficult thing about taking care of a child with eczema? What strategies help you with your general and mental health<\/a>?<\/b><\/h4>\n